Wednesday, March 03, 2010

I'm Scared -- by Cara

I’m not typically the type who gets worked up over minor things. I can usually discern the big things to worry about versus the little things. And I’m definitely not one to scare easily. But I have to admit...I’m scared. Or, to put it more succinctly, terrified.

I had a mammography done last Tuesday and the next day, one of my doctors called me rambling on about something being not very common, but just get the test done as soon as possible, and I stopped him. I politely said, “I don’t know what you are referring to.” “Your mammography, of course! Haven’t they called you to get a sonogram done?” I said no one except he had called me. He told me that according to the fax he received, I have a “suspicious node” that they need to do a sonogram on and possibly a biopsy. I was like a deer stuck in headlights. I was just so stunned, I didn’t even have my head together to ask further questions. The only thing I could think of was...cancer.

My mother died of ovarian cancer when I just turned 19 years old. My son is only 6. The affects of my mother’s death have traumatized me my entire life. I don’t want my son to have to experience that. I REFUSE to allow my son to experience that. That whole night, that’s all I could think of...my mother and my son. Along with, this can’t happen. This WON’T happen. I had a tough time falling asleep that night.

The next day, even before my son left for school, I was barraged with phone calls ALL. DAY. LONG. No sooner did I hang up the phone with the radiology place, then the gynecologist called. The radiology place made me an appointment for Monday. The radiology place called back...no doctors would be in to read films on Monday but they ALL would be in on Tuesday, so they rescheduled me for Tuesday (I thought, what crazy schedule does this place have? Can’t ONE doctor at least be there on a Monday??!! Healthcare is becoming beyond ridiculous. But we’ll save that discussion for another blog). Then the nurse at the gynecologist’s office said, “You mean they let you leave without taking more films?” I explained that, again, there weren’t any doctors to read films in that day. I called several friends I know who went through the same procedure, all with benign outcomes. A couple had to have two biopsies done. My head was spinning. Because all of the medical people I spoke with were nurses or receptionists, I couldn’t get any solid information. Everyone was vague but insistent. One minute I was practically in tears, the next I was being reassured by my fabulous group of friends.

The next thing I thought of was a Health Care Proxy. I needed a new one. Everyone should have one. I called my lawyers office to have my existing one dug up and revised to have my best friend put on it as my agent. She works in the medical field, has had 3 of these types of biopsies and has two very medically savvy parents. I wanted my health care proxy changed ASAP.

Then I thought of my son...he’s so young. He needs his mother. What if this doesn’t bode well and I am in the hospital a lot? Sick from drugs? How does one even attempt to explain this to a 6 year old? He needs me. I need him. We need each other.

My next thought, to try to calm myself down, was the BRACA test I had taken a few years back. It is a genetic test to determine whether you carry the gene to predispose you for breast or ovarian cancer. It came back negative. That’s good. Really, really good.

But then there has been the ongoing, unrelenting high stress level I have been experiencing the past few years. My father’s death. My son’s learning issues. The multitude of arguments with my husband. Anyone with this type of stress would have cells mutating! Heck, my whole life has been one heavy duty stressful event after another! Cells are bound to change with all of the stress hormones that have been washing over them during all this time!

And my friends. My wonderful, incredible friends. At least a dozen of them...old and new...calling me, e-mailing me constantly to find out how I am and reassuring me that everything is going to be okay. I have a lot going for me. I never, ever had even a slightly abnormal mammogram before this. I do regular breast self exams. Heck, I had an appointment with my gynecologist the week before and she didn’t feel anything suspicious when she did her breast exam at that visit.

So, I decided I had to pull myself together and remain as calm as possible. I can’t control fate, I can only control how I deal with it. If it were dire, I’m sure they would have either fit me in for a sonogram that first day or just plain sent me to the hospital to get it done.

So now I wait. And I pray. And I shoveled 14 inches of snow today off my porches, stairs, and walkways, thinking, “Maybe the exercise will be good for me mentally and physically.” And I vowed to do more regular exercise to at least temper the stress hormones. The endorphins can only help me. So shovel I did. And I will go to the gym or find more ways to fit in exercise into my ragged days.

By the time this is posted, I will know my results. Or at least know more than I know right now and have a better idea of what I am facing. Good or bad, I’m making changes. Big changes. And although I have every reason to believe that the outcome will be benign, I’ll be prepared for anything. I’m a fighter. I’m tenacious. And nothing is taking me away from my little boy right now. No way, no how. That’s just how it’s going to have to be,“suspicious node” or not. Nothing is coming between my son and me. Absolutely nothing.

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Thursday, December 13, 2007

Fibroid Field Day

My estrogen is raging....and so am I. I want to start a campaign to STAMP OUT FIBROIDS. What is the deal with them?

I'm 47...on the verge of perimenopause, and not liking it. My estrogen is at an all time high, and my fibroids are having a field day.

I had a doctor appointment yesterday at a local hospital with an UFE expert. Uterine Fibroid Embolization is the process. They cut off the blood supply to fibroids by injecting small synthetic pellets into the arteries that feed the uterus. Yikes! Who comes up with these things?

I went to explore at the suggestion of the new gynecologist I just switched to. Luckily the UFE guy did not try to do a hard sell. I think he could see I was not going to sign readily on the dotted line. He showed me my MRI films, and it was actually quite enlightening. I saw my uterus on a screen, in all it's fibroid glory. I thought I was looking at a road map with huge glaciers blocking the path. Amazing and alarming at the same time!

We discussed the process, which itself didn't sound like a huge big deal. It's not a major surgery, compared to a hysterectomy. But, it's the uncertain aftermath that concerned me the most. The doctor was quite honest....surprisingly...and refreshingly so...and said that my case wasn't going to be easy. I was likely looking at a year of pain/from the healing, fibroid and uterus shrinking, etc.

Since I'm not hugely symptomatic at this point, I'm not rushing into anything. I am slightly anemic (I take a liquid iron supplement) and have bouts of discomfort from them, but I've lived with them since my 20s. I had a myomectomy years ago (surgery to remove the fibroids) in order to make room for a baby, and it left me with scarring around one tube, and thus fertility challenged. The gynecologist never told me at the time that that could happen.

So....all this said....what I wonder is why no one has come up with a better solution for those who suffer from debilitating fibroids? If men got them too, would more funds be devoted to research? There is big money to be made from hysterectomies, which is the course of action most typically recommended. But, the
surgery is nothing to sneeze at. It can lead to immediate menopause, and I'm not 50 yet.

I cross my fingers I can make it until menopause, when the fibroids will start to shrink on their own. Until then, I'll take the supplements (not hormonal) suggested to me by my integrative doctor, and hope for the best.

Do you suffer from fibroids too?

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